Defining the components of an occupation-based intervention for people with Parkinson’s with anxiety using Group Concept Mapping
Sounds a bit complicated – what is it about?
The Study will use a particular method and process to collect and analyse information and ideas about anxiety in Parkinson’s. Participants will be those afflicted and their care partners if they wish, and suitably qualified occupational therapists. The Study has full Ethics Approval .
What is the objective?
To assist the development of a new intervention (aka treatment) to help people with Parkinson’s live well with anxiety. The treatment is to be “occupation-based”, meaning a prescription for things to do and not do rather than a pharmacological intervention (aka drug).
Where do I take part?
How much of my time will it take?
3 to 5 hours spread over a fixed calendar of three two-week stages. Within each two-week period the work for the stage can be done at your convenience.
What does it involve me in doing?
Using a computer-based tool on a secure website, either yourself or with your care partner at the keyboard. The first stage is to come up with ideas about anxiety in Parkinson’s, as many ideas as you want to. Then sort your ideas into groups that make sense to you. At this stage you can see the ideas of the other participants (anonymously). Lastly.give each idea a score of how important that you think it is. All participants will be sent a summary of the study findings.
Who is eligible?
People with Parkinson’s, their care partners, and Occupational Therapists who have experience of working with people with Parkinson’s and/or anxiety.