In the first of our “Meet The ResearcheD” series of videos, PenPRIG turns the Zoom camera on the other end of the stick, the people who participate in research as the target of a novel treatment. Drs. John and Sue Whipps give a presentation about their journey from his diagnosis to their involvement in clinical trials, explaining the issues they dealt with along the way. They take questions from a Panel and explore the challenge of finding and motivating people to get involved.
There are strong messages here about involvement, the pay-back from it, and the contribution a partner can make. This video is aimed at those who are recently diagnosed and those further down the track who are open to the possibility of participation.
We promise a jargon-free experience.T he video is 20 minutes long and the Panel session a further 25 minutes. Click this link, and we hope you find “NJALOOT” useful and enjoyable!
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Dr. Stephen Mullin holds a clinical lectureship in Neurology at The Faculty of Medicine and Dentistry at Plymouth University. In this presentation he described how the GBA gene causes Parkinson’s, outlined some exciting recent advances in drug development, and fielded questions from the audience.
In recent years it has become clear that genetics plays a key role in the development of Parkinson’s. By understanding genetic pathways, the hope is that a novel drug to prevent or slow down Parkinson’s development can be produced. One of the most common genes implicated in Parkinson’s is glucocerebrosidase (GBA). About 10% of people with Parkinson’s in the UK carry a mutation in this gene.
Meet The Researcher Online:
Using psychological strategies to overcome freezing of gait in Parkinson’s
Dr. Will Young kindly agreed to an online replacement of a “Meet The Researcher” event lost to the Covid-19 Lockdown in March. He gave this presentation about his work and took questions from our Panel.
His concluding message was “I always look for advice and comments from local Parkinson’s branches and groups to help guide ongoing and future research. If you experience regular freezing of gait and you or your friends and family are interested in joining a dedicated group to advise on this research, please contact me directly via my University Profile.
Claire Bale of Parkinson’s UK kindly agreed to this online replacement of the meeting lost to the Covid-19 Lockdown in March. She gave this presentation and fielded questions from our Panel.
Simon Stott introduces “disease modification” and sets out the directions the research community is taking to tackle Parkinson’s along with the related drug trials. His presentation is followed by a Q&A Panel. The questions addressed genetic research and its applicability to the idiopathic diagnosis, the impact of Covid-19, and when new treatments could be available.