Privacy Policy

Who we are

This website represents the Peninsular Parkinson’s Research Interest Group (PenPRiG), an unincorporated group of volunteers promoting participation in the research of Parkinson’s Disease by people living in Cornwall and Devon.

Your Rights

Any of your personal information held by PenPRiG is subject to the General Data Protection Regulation (GDPR) and we are committed to the correct treatment of it.  Amongst other rights, you have the right to access the information we hold about you, and have it changed, no longer be used or erased.  We describe how to exercise this right at the end of this page.

The information we display

This website displays information about research into Parkinson’s gathered from many reputable sources.  We write articles and express opinions.  We disclose contact information only if it is already in the public domain or because we have been given explicit consent to do so.

The information we collect

The Feedback Form and The Local Research Studies Platform are the only places on this website where personal data can be collected. Your name and email address is required. You may choose to give us additional personal information in the form or in subsequent contact through email, post and telephone.  Other websites that we link to have their own privacy policies.  We do not accept any responsibility or liability for them, so please check their privacy policies before you submit personal data.

The information we hold

We hold the information to help us promote the interests of PenPRiG and to manage the content and effectiveness of the website.  Information we gather through the Feedback Form and through subsequent email or telephone communication is securely stored and managed to professional standards.
Website statistics may be retained in perpetuity.  Feedback Form contents may inform us but in any event are deleted after 6 months.  We do not sell or rent our information to anyone.  Nor do we purchase such information.

How to exercise your Rights

In order to exercise your rights, you will need to prepare a “Subject Access Request” and send it to admin@penprig.org.uk.  We can help you present it verbally instead, and you can also authorise someone else to submit the request on your behalf.

We are allowed up to one month to respond to a valid request.  You can then have us correct any information that we hold about you, stop using it or erase it.  We will do this straightaway unless we are prevented from doing so by law or a contract.

If you are dissatisfied with our response to your Subject Access Request or with the privacy policies set out here, you can approach the Information Commissioners Office https://ico.org.uk/make-a-complaint/your-personal-information-concerns/.